I live in Wellington NZ and have ms, which means I basically have a walking disability (amongst other things..) BUT it doesn’t mean that life has ended it just means starting over again. This is my journey and my family's too, and all the adventures we experience along the way!
Survived that.....
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The holiday season has almost finished, and I survived….
I managed everything that was thrown at me over the last 2 weeks, from looking after three 7 year-old children on school holidays, to entertaining people to buying presents (online) to going to the beach. It wasnt a roaring success but we all got through it… Having ms means having to cope with fluctuating functional abilities on an almost daily basis. I was getting about quite ‘fine’ until I went to the beach and somewhere along the way for whatever reason, my mobility rapidly got MUCH worse in an amazingly short space of time. Also for an unexplained reason my lower back went out compounding my already tottering movements. Anyhow. The band plays on.
Fast forward to today and I managed to submit an assignment to Openpoly technic which was becoming overdue, and also managed to take some more half-decent photos of the latest jewellery – the results of which are below…
If anyone fancies any pieces please let me know at takiriaotearoa@gmail.com or by completing the form that follows. Prices range from $15 for a set of earings, $20 for a bookmark, $25 to $35 for a necklace and the bracelets also range from $25 to $40. Postage/shipping will have to be added on depending on where they must go.
The necklace is made from 2 x kashmiri beads, a silver plated clasp, faux-leather strap (+/- 40cm long) and pewter and iron metal beads.The bracelet is made from sterling silver beads on a faux-leather strap. Fits my wrist!The bracelet is made from 3 x Kashmiri beads, 4 x silver koru, silver barrel beads and crystal rondells – suitable for an adult female wristSilver plated bookmark with 3 16 mm, round, handmade kashmiri bead having 3 – 3.5 mm hole size. Hand-studded with metal rings & accessoriesSilver plated bookmark with a 16 mm, round, handmade kashmiri bead having 3 – 3.5 mm hole size. Hand-studded with metal rings & accessoriesSilver plated bookmark with 1 x 16 x 12 mm, cylindrical, transparent blue with blue spikes & yellow linings, having 1 – 1.5 mm hole sizeThe bracelet is made from sterling silver and plated beads on a faux-leather strap. One 16 x 12 mm, yellow base, cylindrical, handmade maruti bead with silver plated side caps having 2 – 3 mm hole size.The necklace is made from 2 x kashmiri beads, a silver plated clasp, faux-leather strap (+/- 40cm long) and pewter and iron metal beads.The necklace is made from 2 x kashmiri beads, a silver plated clasp, faux-leather strap (+/- 40cm long) and pewter and iron metal beads.The necklace is made from 1 x kashmiri bead, a silver plated clasp, faux-leather strap (+/- 40cm long) and pewter and iron metal beads.Silver plated earring hooks 16 x 12 mm, yellow base, cylindrical, handmade maruti bead with silver plated side caps having 2 – 3 mm hole size. Hand-studded with pale green and white rhinestonesSilver plated earring hook 16 x 12 mm, yellow base, cylindrical, handmade maruti bead with silver plated side caps having 2 – 3 mm hole size. Hand-studded with blue and white rhinestonesSilver plated earring hook 13 mm, round, black kashmiri bead having 3 – 3.5 mm hole size. Hand-studded with metal rings and pale blue rhinestonesSilver plated earring hook 16 x 12 mm, cylindrical, handmade maruti bead with silver plated side caps having 2 – 3 mm hole size. Hand-studded with metal chain hearts decorations and red and white rhinestones –Silver plated earring hooks with 2 x 16 x 12 mm, cylindrical, transparent blue with blue spikes & yellow linings, having 1 – 1.5 mm hole sizeSilver plated earring hook 13 mm, round, emerald-green kashmiri bead having 3 – 3.5 mm hole size. Hand-studded with metal ringsSilver plated earring hook 13 mm, round, teal-blue kashmiri bead having 3 – 3.5 mm hole size. Hand-studded with metal ringsSilver plated earring hook 16 x 12 mm, yellow base, cylindrical, handmade maruti bead with silver plated side caps having 2 – 3 mm hole size. Hand-studded with red and white rhinestonesSilver plated earring hook 16 x 12 mm, round, handmade maruti bead with silver plated side caps having 2 – 3 mm hole size. Hand-studded with red and white rhinestones
Still going strong.... So its been quite a while since last I wrote anything and that hasn't been because I haven't wanted too, its been because I am dead tired by the weekend after a week of work. In August this year, more out of a whim than anything else, I decided to talk to a large (and very prestigious) national arts company here in Wellington and see if they would take pity on poh' little me, my being disabled and all that, and to my shock and horror, they offered me a real job. The first 'real' one in 4 years. The job entails me running the volunteers for the organisation (the "Friends") and maintaining and developing the philanthropy that is part and parcel of a 1000+ membership database. I am kept very busy administering the organisation and attending to the various - and many - vagaries that come with the position. Having MS was the real kicker. It is like a shadow hanging over my every move. Although I have become very adept at its mana
The headline on the online news feed that I subscribe to announced tonight: - Trump says US mulling 'very severe' response to North Korea missile test - somehow I don't think that that means that he is going to put on a frowny face, or threaten to hold his breath……..oh well lets enjoy it all while we can. The sunset tonight was very pretty… Here in NZ the seasons are evidently on the cusp of changing. A week or so back we passed mid-winter and in theory that means that we are now heading towards spring/summer/hot weather. There was thick frost on the roofs a few days back and the temperature hovers around 5 deg C at midday, however the bright sun during the day prompts the insane locals to go out in shorts and tee shirts while I wear a beanie, scarf and thick parka…..I am a happy wimp when it comes to (not) braving the weather. But evidently it will defrost and get warmer, and I live for that because boy, am I ever battling at the moment! My experiences of find
I have been very quiet for a few weeks as things have gotten hectically busy recently. After A LOT of searching and many trials and tribulations, I landed a great job - 25 hours a week and utilizing my knowledge and experience in the performing arts sector. I am not saying where or what it is exactly but it doesn't pay badly, I am a manager and the other people I work with are really great and very supportive. Sometimes good things happen too…. I also went for my yearly appointment with the Neurologist. There was a new intern this year and he proceeded to examine me and ask how things were. Well, great actually considering that the medical profession has not come up with ANY treatment plan for me ever. To my shock and horror he said that I am eligible for a trial run of Ocrelizumab, shock as I did not think that I would be eligible and horror as the drug (which is not yet available in NZ) will cost - wait for it - $NZ67 000.00 for a single 6-month transfusion. I
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