I live in Wellington NZ and have ms, which means I basically have a walking disability (amongst other things..) BUT it doesn’t mean that life has ended it just means starting over again. This is my journey and my family's too, and all the adventures we experience along the way!
Survived that.....
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The holiday season has almost finished, and I survived….
I managed everything that was thrown at me over the last 2 weeks, from looking after three 7 year-old children on school holidays, to entertaining people to buying presents (online) to going to the beach. It wasnt a roaring success but we all got through it… Having ms means having to cope with fluctuating functional abilities on an almost daily basis. I was getting about quite ‘fine’ until I went to the beach and somewhere along the way for whatever reason, my mobility rapidly got MUCH worse in an amazingly short space of time. Also for an unexplained reason my lower back went out compounding my already tottering movements. Anyhow. The band plays on.
Fast forward to today and I managed to submit an assignment to Openpoly technic which was becoming overdue, and also managed to take some more half-decent photos of the latest jewellery – the results of which are below…
If anyone fancies any pieces please let me know at takiriaotearoa@gmail.com or by completing the form that follows. Prices range from $15 for a set of earings, $20 for a bookmark, $25 to $35 for a necklace and the bracelets also range from $25 to $40. Postage/shipping will have to be added on depending on where they must go.
Still going strong.... So its been quite a while since last I wrote anything and that hasn't been because I haven't wanted too, its been because I am dead tired by the weekend after a week of work. In August this year, more out of a whim than anything else, I decided to talk to a large (and very prestigious) national arts company here in Wellington and see if they would take pity on poh' little me, my being disabled and all that, and to my shock and horror, they offered me a real job. The first 'real' one in 4 years. The job entails me running the volunteers for the organisation (the "Friends") and maintaining and developing the philanthropy that is part and parcel of a 1000+ membership database. I am kept very busy administering the organisation and attending to the various - and many - vagaries that come with the position. Having MS was the real kicker. It is like a shadow hanging over my every move. Although I have become very adept at its mana...
I spent most of my working-life pre-ms, in live entertainment and events and the working hours were very abnormal, so now in-spite of ms, or perhaps because of it I still find myself getting up after everyone has gone to bed and staying up until 4 or 5 in the morning (not every night…) So, at 01:30 I am listening to John Coltrane and Miles Davis in the headphones while I write this and the icy rain is persistently lashing the quiet street outside… So, you may have noticed that this is a new blog-platform and a new format to my blogs. When I started out blogging, it was 100% due to an idea from Suburban co-working here in Wellington, who were mentoring me at the time. I was their student and the whole mentoring-thing was a brand new idea, a bit of an experiment too. The idea behind the blogging was in order to help sell my range of jewellery - tākiri - and get moving my idea for creating a social-enterprise involving other disabled people. Well the jewellery and momentum fo...
The headline on the online news feed that I subscribe to announced tonight: - Trump says US mulling 'very severe' response to North Korea missile test - somehow I don't think that that means that he is going to put on a frowny face, or threaten to hold his breath……..oh well lets enjoy it all while we can. The sunset tonight was very pretty… Here in NZ the seasons are evidently on the cusp of changing. A week or so back we passed mid-winter and in theory that means that we are now heading towards spring/summer/hot weather. There was thick frost on the roofs a few days back and the temperature hovers around 5 deg C at midday, however the bright sun during the day prompts the insane locals to go out in shorts and tee shirts while I wear a beanie, scarf and thick parka…..I am a happy wimp when it comes to (not) braving the weather. But evidently it will defrost and get warmer, and I live for that because boy, am I ever battling at the moment! My experiences of find...
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