Showing posts from September, 2017

All quiet, kind of.....

I have been very quiet for a few weeks as things have gotten hectically busy recently.
After A LOT of searching and many trials and tribulations, I landed a great job - 25 hours a week and utilizing my knowledge and experience in the performing arts sector. I am not saying where or what it is exactly but it doesn't pay badly, I am a manager and the other people I work with are really great and very supportive. Sometimes good things happen too….
I also went for my yearly appointment with the Neurologist. There was a new intern this year and he proceeded to examine me and ask how things were. Well, great actually considering that the medical profession has not come up with ANY treatment plan for me ever. To my shock and horror he said that I am eligible for a trial run of Ocrelizumab,shock as I did not think that I would be eligible and horror as the drug (which is not yet available in NZ) will cost - wait for it - $NZ67 000.00 for a single 6-month transfusion. I decided that as I canno…